Comments for Distinctly Oklahoma Magazine http://distinctlyoklahoma.com People, Events, and Style for Oklahomans by Oklahomans Sun, 13 May 2012 16:04:53 +0000 hourly 1 http://wordpress.org/?v=3.3.2 Comment on The Long Haul: Life With an Eosinophilic Disorder and a Race to Raise Awareness by Mike and Jill - Riley's parents http://distinctlyoklahoma.com/features/eosinophilicgastroenteritis/#comment-1406 Mike and Jill - Riley's parents Sun, 13 May 2012 16:04:53 +0000 http://distinctlyoklahoma.com/?p=2450#comment-1406 As the parents of Riley, we would like to thank you each of you for sharing your story. All of us have felt alone with this condition, but now hearing others share their story gives us encouragement to keeping pressing on. Riley's Run is not just about Riley, it is about all of us who have heard a doctor say, "I don't know what it going on," "it is just acid reflux," or "it is just stress." It is about kids who can't eat birthday cake, ice cream, or pizza. Riley's Run is also a celebration that positive changes are happening with this condition, and it gives all of us hope that one day this condition will be a distant memory. Due to your connections with Eosinophilic conditions, we would love to talk with each of you about participating in this event. Please feel free to email us at Info@RileysRun.com and we will personally contact you. Thank you again for your comments and support! As the parents of Riley, we would like to thank you each of you for sharing your story. All of us have felt alone with this condition, but now hearing others share their story gives us encouragement to keeping pressing on. Riley’s Run is not just about Riley, it is about all of us who have heard a doctor say, “I don’t know what it going on,” “it is just acid reflux,” or “it is just stress.” It is about kids who can’t eat birthday cake, ice cream, or pizza. Riley’s Run is also a celebration that positive changes are happening with this condition, and it gives all of us hope that one day this condition will be a distant memory.

Due to your connections with Eosinophilic conditions, we would love to talk with each of you about participating in this event. Please feel free to email us at Info@RileysRun.com and we will personally contact you. Thank you again for your comments and support!

]]> Comment on The Long Haul: Life With an Eosinophilic Disorder and a Race to Raise Awareness by Hailey Wilde http://distinctlyoklahoma.com/features/eosinophilicgastroenteritis/#comment-1327 Hailey Wilde Fri, 11 May 2012 13:51:43 +0000 http://distinctlyoklahoma.com/?p=2450#comment-1327 My son is 11 months old and was diagnosed with EE a little over a week ago. I can really empathize with you guys I would get so mad when we would go to our pediatrician and they would say "it's just reflux, he will grow out of it". Everyday was a constant struggle Braylon would try to nurse but after about 10 min he would be arching back screaming. He wasn't like a colic baby who cried it the evenings his cries were inconsolable. Thankfully after taking him to the Dr and letting them hear him scream for an hour, and after about 5 different formula changes they sent me to a gastro Dr who said ot was just he needed a more broken down formula and put him on elecare. At about 8 months he stopped liking that stuff and I can't blame him the smell is awful and the taste was bitter and gross. We went back to the Dr and they said to try him on soy that it would be a gentle transition and he would be able to tolerate it now. THAT threw things out of control. We had already eliminated all of his foods besides sweet potato and apples but the soy sent him to the hospital projectile vommiting again and arching his back. The Dr there (a complete idiot) did the opposite of everything I asked and said he had a stomach bug. I personally drove myself and my son to an allergist and demanded testing for allergies. The problem was everything came back negative besides soy, even though he was truly allergic to other foods. So I went back to my gastro and they performed a endoscopy and biopsy and thought everything appeared to be normal structuraly his Eo count was around 50 well above the normal 0. Were taking the time going back threw and elimination diet but he still won't drink the elecare even the vanilla flavored. I think yall are so brave to have gone threw all this, and the stomach tube. Thank you for sharing your story it makes me feel like I'm not alone. I cry at night because I'm scared if Braylon will need a stomach tube people will make fun of him, but your story gives.me piece of mind. I will pray for this beautiful little girl and for a cure for her and all children fighting this everyday battle! My son is 11 months old and was diagnosed with EE a little over a week ago. I can really empathize with you guys I would get so mad when we would go to our pediatrician and they would say “it’s just reflux, he will grow out of it”. Everyday was a constant struggle Braylon would try to nurse but after about 10 min he would be arching back screaming. He wasn’t like a colic baby who cried it the evenings his cries were inconsolable. Thankfully after taking him to the Dr and letting them hear him scream for an hour, and after about 5 different formula changes they sent me to a gastro Dr who said ot was just he needed a more broken down formula and put him on elecare. At about 8 months he stopped liking that stuff and I can’t blame him the smell is awful and the taste was bitter and gross. We went back to the Dr and they said to try him on soy that it would be a gentle transition and he would be able to tolerate it now. THAT threw things out of control. We had already eliminated all of his foods besides sweet potato and apples but the soy sent him to the hospital projectile vommiting again and arching his back. The Dr there (a complete idiot) did the opposite of everything I asked and said he had a stomach bug. I personally drove myself and my son to an allergist and demanded testing for allergies. The problem was everything came back negative besides soy, even though he was truly allergic to other foods. So I went back to my gastro and they performed a endoscopy and biopsy and thought everything appeared to be normal structuraly his Eo count was around 50 well above the normal 0. Were taking the time going back threw and elimination diet but he still won’t drink the elecare even the vanilla flavored. I think yall are so brave to have gone threw all this, and the stomach tube. Thank you for sharing your story it makes me feel like I’m not alone. I cry at night because I’m scared if Braylon will need a stomach tube people will make fun of him, but your story gives.me piece of mind. I will pray for this beautiful little girl and for a cure for her and all children fighting this everyday battle!

]]> Comment on Birding Oklahoma by Debbie Ferrell http://distinctlyoklahoma.com/events/birding-oklahoma/#comment-1293 Debbie Ferrell Thu, 10 May 2012 01:58:27 +0000 http://distinctlyoklahoma.com/?p=2412#comment-1293 Loved the article. It's well written and images are beautiful. I look forward to reading more articles such as this. Loved the article. It’s well written and images are beautiful. I look forward to reading more articles such as this.

]]> Comment on The Long Haul: Life With an Eosinophilic Disorder and a Race to Raise Awareness by Megan Von Tungeln http://distinctlyoklahoma.com/features/eosinophilicgastroenteritis/#comment-1206 Megan Von Tungeln Sat, 05 May 2012 15:00:25 +0000 http://distinctlyoklahoma.com/?p=2450#comment-1206 I struggled for years with G.I. problems and doctor after doctor gave me no hope, telling me it was nerves, blaming me for doing it to myself. About two months ago I was diagnosed with eosiniphilic gastroentertitis. My life has been on hold for almost three years because of this horrible disorder and because not even doctors know enough about it. I want to thank Riley and her family so much for bringing this disorder to light and giving those of us who are struggling hope. Riley seems like such a strong and happy little girl, I'm so glad I heard her story. I struggled for years with G.I. problems and doctor after doctor gave me no hope, telling me it was nerves, blaming me for doing it to myself. About two months ago I was diagnosed with eosiniphilic gastroentertitis. My life has been on hold for almost three years because of this horrible disorder and because not even doctors know enough about it. I want to thank Riley and her family so much for bringing this disorder to light and giving those of us who are struggling hope. Riley seems like such a strong and happy little girl, I’m so glad I heard her story.

]]> Comment on The Long Haul: Life With an Eosinophilic Disorder and a Race to Raise Awareness by Liz Meyer http://distinctlyoklahoma.com/features/eosinophilicgastroenteritis/#comment-1156 Liz Meyer Wed, 02 May 2012 13:00:13 +0000 http://distinctlyoklahoma.com/?p=2450#comment-1156 I too have just been diagnosed with an Eosinophilic disorder. Mine is Eosinophilic Esophagitis meaning my esophagus is most affected and mine seems to be more affected by aero allergens than foods. I'm 42 and it feels like I'm the only one who has this, so I can understand how it would feel to have a child with this. My thoughts are with you and Riley. Before I got sick (almost a yr ago) I was a runner and I haven't ran since last April. I would love to be a part of this run. What a great idea. I too have just been diagnosed with an Eosinophilic disorder. Mine is Eosinophilic Esophagitis meaning my esophagus is most affected and mine seems to be more affected by aero allergens than foods. I’m 42 and it feels like I’m the only one who has this, so I can understand how it would feel to have a child with this. My thoughts are with you and Riley. Before I got sick (almost a yr ago) I was a runner and I haven’t ran since last April. I would love to be a part of this run. What a great idea.

]]> Comment on The Long Haul: Life With an Eosinophilic Disorder and a Race to Raise Awareness by Mary Lee Kennedy http://distinctlyoklahoma.com/features/eosinophilicgastroenteritis/#comment-1148 Mary Lee Kennedy Tue, 01 May 2012 23:36:04 +0000 http://distinctlyoklahoma.com/?p=2450#comment-1148 Our grand daughter was diagnoised at 2 with ee. When she was 3 weeks old she projectile vomited and block her air way and she stopped breathing. SCARY!!! The paramedic and hosptial ER were wonderful! And the story continues....much like yours. Thank you for making people aware! Our grand daughter was diagnoised at 2 with ee. When she was 3 weeks old she projectile vomited and block her air way and she stopped breathing. SCARY!!!
The paramedic and hosptial ER were wonderful! And the story continues….much like yours. Thank you for making people aware!

]]> Comment on Earth, Air, Fire and Water: The Citizen Potawatomi Nation’s Commitment to Thermal Energy Transfer by Native Geothermal http://distinctlyoklahoma.com/science/thermalenergy/#comment-1118 Native Geothermal Sat, 28 Apr 2012 17:57:07 +0000 http://distinctlyoklahoma.com/?p=2324#comment-1118 Congratulations to the Citizen Pottawatomi. The world needs more of your brand of common sense economic, environmental and social leadership. Keep up the good work! Congratulations to the Citizen Pottawatomi. The world needs more of your brand of common sense economic, environmental and social leadership. Keep up the good work!

]]> Comment on HOMEWARD BOUND, AUSTRALIA by Gem Culank http://distinctlyoklahoma.com/cover-story/homewardbound/#comment-893 Gem Culank Wed, 21 Mar 2012 04:12:58 +0000 http://distinctlyoklahoma.com/?p=2240#comment-893 Made interesting reading Kerry. All the different things you have accomplished. Bonnie would have been so proud. Made interesting reading Kerry. All the different things you have accomplished. Bonnie would have been so proud.

]]> Comment on Major Janie Howard – On The Front Lines of Healing by Jerry Jensen http://distinctlyoklahoma.com/features/healing/#comment-892 Jerry Jensen Tue, 20 Mar 2012 13:59:59 +0000 http://distinctlyoklahoma.com/?p=2216#comment-892 Dr. Howard is a true hero, someone who is serving because she believes it is the thing to do. Another true hero, Dr. Shad Satterthwaite is also serving in Afghanistan with the 45th. As an OU professor, he didn't have to go but felt it was the thing to do. I am so proud of both of these professionals who answered the call to duty along with all of their counterparts currently serving in harm's way. Thanks for writing about these Oklahoma heroes. Dr. Howard is a true hero, someone who is serving because she believes it is the thing to do. Another true hero, Dr. Shad Satterthwaite is also serving in Afghanistan with the 45th. As an OU professor, he didn’t have to go but felt it was the thing to do. I am so proud of both of these professionals who answered the call to duty along with all of their counterparts currently serving in harm’s way. Thanks for writing about these Oklahoma heroes.

]]> Comment on THE THREE C’s: CUPCAKES, CAKE POPS & COOKIES by Lourdes Reyes http://distinctlyoklahoma.com/features/thethreecs/#comment-888 Lourdes Reyes Tue, 20 Mar 2012 02:17:07 +0000 http://distinctlyoklahoma.com/?p=2242#comment-888 Mrs. Kerry Vincent's article is very interesting, it is always good to know about how cake decorating world has changed and become such a fun thing to do. Mrs. Kerry Vincent’s article is very interesting, it is always good to know about how cake decorating world has changed and become such a fun thing to do.

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